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Endometriosis In America: What's That?

Thank you for your interest. The 2021 Endometriosis In America survey is now closed. Survey results will be shared soon.

It can take years to receive an endometriosis diagnosis, often while experiencing frequent and debilitating symptoms, such as pain. To learn more about the challenges of endometriosis, and to give a voice to those affected, we're conducting our Endometriosis In America survey.

What's the survey about?

The survey covers “basics” like diagnosis and treatment experiences, but also dives into the nitty-gritty, like the emotional impact and the day-to-day challenges of managing endometriosis. We hope to learn more all things endometriosis, including complementary and alternative treatments, diet & nutrition, symptoms, and quality of life!

Why should I take the survey?

Each person who takes the survey contributes to a better understanding of endometriosis awareness and knowledge, and can help others who are dealing with endo to feel less alone. Sharing your experiences through the survey can reveal the similarities, and differences, between each person’s journey with endometriosis, and can bring greater awareness to this condition that affects 1 in 10 people.

What Will the Survey Ask Me?
The survey will ask about diagnosis, symptoms, symptom management, quality of life and relationships, healthcare professional engagement, and treatment awareness and experience. We do not require your name, address, or other personal information.

Please note that you do not have to take the survey all at once. Feel free to bookmark the survey in your Internet browser and return when you are able. You will resume where you left off.

How Do We Use the In America Survey Data?
Survey responses help us and our partners better understand the endometriosis community. All survey responses are kept confidential, reported only in total (your specific responses will not be reported individually), and will become property of Health Union, LLC.

What happens after I take the survey?

After the survey closes each year, the Editorial Team at Endometriosis.net takes your responses and creates an infographic to share the community's responses, and highlight important findings from the survey.

But that’s not all – throughout the year, we publish articles and videos based on learnings from the survey, like this one about dealing with the complications of endometriosis. We hope that this survey-driven content contributes to the information available to those affected by endometriosis, and helps them connect with those who have walked the same path.

One voice may seem like it won’t make a difference, but each voice can change how others perceive life with endometriosis, and bring comfort to someone coping with a diagnosis.

Still have questions? Comment below, or email us at contact@endometriois.net for more information.

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Community Poll

Have you had any of the following surgeries for your endo?