Endometriosis In America: What's That?

Last updated: January 2023

It can take years to receive an endometriosis diagnosis, often while experiencing frequent and debilitating symptoms, such as pain. To learn more about the challenges of endometriosis and to give a voice to those affected, we're conducting our Endometriosis In America survey.

What's the survey about?

The survey covers “basics” like your diagnosis and treatment experiences, but also dives into the nuances of endometriosis, like the emotional impact and day-to-day challenges. In addition, you’ll have the opportunity to not only tell us about endometriosis but also any other conditions you are living with and how each impacts your life.

Why should I take the survey?

Each person who takes the In America survey contributes to a better understanding of endometriosis as well as other health conditions. With better knowledge, we can help others who are navigating health challenges feel less alone. We hope to capture a full picture of all aspects of your health experiences and bring greater awareness to conditions that may be misunderstood. Sharing your experiences through the survey can reveal how similar each person’s journey is, as well as the differences that make each journey unique.

What Will the Survey Ask Me?

The survey will ask about different moments of your journey with endometriosis, including:

  • Diagnosis
  • Symptoms and symptom management
  • Quality of life
  • Treatment awareness and experience
  • Other diagnosed conditions

We do not require your name, address, or other personal information for you to participate. You also do not have to take the survey all at once. Feel free to bookmark the survey in your Internet browser and return when you are able. You may continue where you left off.

How Do We Use the In America Survey Data?

Survey responses help us and our partners better understand the endometriosis community. All survey responses remain confidential, reported only in total. This means your specific responses will not be reported individually. All information will become property of Health Union, LLC.

What happens after I take the survey?

After the survey closes each year, endometriosis.net will share the responses back to the community and highlight important findings from the survey. You can read the latest In America survey findings in Endometriosis In America: Community Findings Over The Years.

But that is not all. Throughout the year, we publish articles and videos based on what we learned from the survey. We hope this survey-driven content contributes to the information available to those affected by endometriosis and helps you all connect with others who walk the same path.

Sharing your story can make a difference, and we believe each story can change how others understand life with endometriosis.

Still have questions? Comment below, or email us at contact@endometriosis.net for more information.

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