What changes have you had to make regarding work?
Are you self-employed, half-time, unemployed, on disability, or getting accommodations at work?
How has that affected you?
I went from being a full-time teacher to working remotely as a consultant. I am fortunate that I have a partner with a steady income to supplement the slow times but overall, it is the best thing I have done for my health. When I'm working a contract I set my own hours which means as long as I get the work done I am free to take a nap if I need it or work only mornings which works best for me.
My mental health has been a struggle though. After so many years of pushing through pain and being praised for productivity and professional accomplishment, so much of my self-worth is tied up in my career. It's been over a year and I still get stuck in the pattern of needing to accomplish to earn rest. I'm having to revisit my identity and find worth in my life as it is.
I recently just had a hysterectomy to hopefully help my endometriosis but my ovaries are still in. It’s still a long battle but I’ve been without work due to my endo for over a year now and I’ve worked my whole life. Endo has changed my life completely but I’m taking my life back one step at a time❤️
I have had to drop a day at work due to being physically unable to get through a 5 day week, work has been supportive but sometimes I feel they don't support me with my hospital appointments as it means more time off and we are already short staffed.
I have to attend the women's hospital every 4 weeks and I have to travel by train as I don't drive and the hospital is away from my home town.
I am on the waiting list and have been since October last year for a full hysterectomy and bowel surgery to as the endo has spread to my bowel.
My consultant told me last October I was at stage 4 and was told I should have the op within 1 year its now November and they are now saying the op won't be this year.
Recently I have been having really bad back ache to a point where the pain engulfs me and makes me sick, after scans they have now found endo on my spine I can barely walk n yesterday at work I tried to continue my job as best I could but broke down due to the pain. My colleagues were so supportive but management less so.
The hospital say I'm on the waiting list and being given medication but I just feel so low now I feel drained I feel like life will never be better for me, my mental health is at all time low the worst its ever been to a point where I've thought of giving in.😢
Endometriosis is a cruel painful debilitating disease more help abd support is needed its not just bad heavy periods like some people think its ruins peoples quality of life its not fair 😢