I have been a 'quiet user' of this site for about 3 months now. I am just reading about your experiences trying to make sense with what is going on with myself.
I am 43 years old. 5 years go, I found out that I had endo when my new husband and I tried to conceive. After 2 inseminations and 4 IVFs someone finally figured out that it might be endo that stood in the way of us having a baby. I have two daughters from my previous marriage. I had them when I was 25 and 28 years old. Did not have many problems conceiving then.
I am reading about many of your experiences with endo and I can't help by think that maybe it is all in my head. My symptoms are so much different. My periods were never painful nor heavy. Right now, my period lasts a day or two max - which is very unusual (I kind of start thinking that it is related to my age more than it is related to endo???).
I had a laparoscopy 5 year ago. I was told that it was stage 3 of endo and my bladder was covered in it (which I thought explained why I had so many bladder infections - over 5 times a year). I also noticed steady weight gain, which I was not able to get rid of with exercise nor a good diet. My life changed dramatically after the surgery. I had more energy, my weight went down, no more bladder infections. It was great. Fast forward 5 years and now I am experiencing some weird GI problems with steady weight gain (again). I have been working with a GI doctor for a while now. He can't find anything abnormal with my intestines. About 3 months ago, it finally hit me, what if endo is back and is implanting itself on my intestines? I talked to my GI doctor, but clearly the man knows nothing about the endo. Any of you ladies experience some unusual symptoms doctors can't explain?
I know my body and I know that something is off. I am tired of doctors not looking at me as the WHOLE, just some chunks related to their specialty. I scheduled an appointment with an expert in endo who I found myself. I can't believe that after my surgery nobody told me that I should be under the care of a specialist and my endo should be monitored. I seriously though that the surgery got rid of it for good.
I am so glad that I found you Ladies...