Intense Pain
Hey I was just wondering if anyone would be able to help. I’ve had terrible periods for a long time now however the last 8 months they’ve been paralysing. I’ve passed out I’ve been sick multiple times I can’t physically move I feel paralysed. My hip constantly hurts throughout the month aswell. I’m pretty sure I’ve got endometriosis but I’m unsure of where to start with the doctors. I’ve had a few times over the years where I’ve been to a&e jn agony and they’ve just palmed it off. It’s affecting my life job everything and I don’t know what to do😩
Hi Lillie1995, I'm so sorry to hear you're dealing with this level of pain and discomfort. Of course, I'm not a doctor, but it definitely sounds like it could be endometriosis.
I would encourage you to read the articles here about pain and symptoms (https://endometriosis.net/symptoms) to see if what you're experiencing matches up. Also check out the diagnosis section (https://endometriosis.net/diagnosis).
I'd also recommend joining the Nancy's Nook Facebook group because there are a lot of research articles there that can be really helpful. You can also use Nancy's Nook as a resource to find a doctor who understands endometriosis (you mentioned A&E so that makes me guess you're in the UK? If so, this link will be helpful: https://nancysnookendo.com/uk-resources/). That is crucial, because general gynecologists are not always well trained to recognize and treat it.
I wish you so much luck and please feel free to reach out if you have further questions. Keep us posted! ~Katrina, Endometriosis.net Advocate
HI
, I'm so sorry that you are dealing with all of this! You are right, this sounds like it could be endometriosis, but could be other things too. Something is definitely not right, and I'd really encourage you to get it checked out sooner than later. If you're in the UK, you probably will need to start out with your GP. It can really help your doctor if you keep daily track of your symptoms and your periods between now and your appointment, so you can take that in to your appointment (timing, intensity, what helps and what makes the pain worse, what your periods are like and when--all of that can be useful). I also suggest taking a support person to your appointment if you can--they can help make sure you get all your questions answered and are clear about the follow-up plan.
The resources thatshared are super helpful. Please let us know how things go for you. Wishing you all the best! -Audrey (endometriosis.net team)
