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Diagnosed incidentally? We want to hear about your experience!

Please share with us!

Were you incidentally diagnosed with endometriosis during a procedure for another condition (e.g. laparoscopy for fibroids, ovarian cysts, etc.)?

  • What type of procedure were you having?

  • Were you surprised to learn you had endo?

  • Were you experiencing symptoms?

  • Anything else to share?

  1. I wasn't diagnosed accidentally, my gynecologist did a laprascopic diagnostic surgery. When I was told that the dr found some endometrial tissue on the outside of my womb, I figured that I would have endometriosis, so I wasn't surprised. I have painful cramps, fatigue, dizziness, brain fog, and nausea. Lemon drops and pedialyte should help with nausea, and Gatorade should help with nausea and dizziness.

    1. Hi @nienna thanks for sharing your experience with this community. I’ve never used gatorade for nausea, but I may give it a go since I am currently suffering from it daily. – Jessie (team member)

  2. YES.

    Having ongoing Gi issues that my GI doc said just didn't make sense. Hard to hear that. I am grateful she didn't quit; she said you are obviously in pain and we need answers. She was actually doing a CT scan of my abdomen and pelvis for other reasons and found the uterine fibroids; she referred me to genecology who thought my symptoms sounded more endo than fibroids and performed a diagnostic laparoscopy.

    She did find endo. . .but changed her mind that probably my symptoms were just coming from my subserosal fibroids, and thought I should have a hysterectomy. Second opinion doc (certified in minimally invasive gynecologic surgery) thinks despite my clinical findings of fibroids and endo, I mostly need cognitive behavioral therapy and hormones for the rest of my life. Third opinion is pending.

    1. Wow. I don't blame you for getting a third opinion. That's certainly a lot to go through. How are you doing with all of that and more importantly, how are you feeling lately? 💛 Kayleigh, Team

  3. Mostly really tired of the uncertainty. It wears you down.

    1. it definitely does wear you down. I can understand that so much. Dealing with major GI issues now and just had a CT scan. Truly hope it shows something. Anything, that can be helpful at this point. I think a third opinion sounds like a good idea for sure. Until then, I hope you take it easy on yourself. Give yourself grace. I know this is frustrating. Sending you the biggest hugs and good thoughts. We are here for you. SO reach out anytime you need us, ok? 💛 -Kimberli (team member)

  4. Seconding words, it absolutely does wear you down. I thought of you yesterday and this conversation and took a moment to send some focused good healing vibes your way. You have our full support here and I hope you know that if you ever need anything, we're here for you. You have a community of support here! How are you doing today? 💛 Kayleigh, team

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