Idk
Hi, to be honest idk if I have endometriosis.But sense I was 13 I have been experiencing horrible pain in my pelvic area. Horrible headache, Lower back pain, leg pain, and lower stomach pain. I tried two hormonal pills and I felt so depressed. I stopped it because I released it was just stopping the pain and not the root cause of the pain. I am now 16 and I am not giving up. Even through I have to miss work because of the pain and school. And feel horrible and terrified of my next period I AM NEVER GIVING UP. And I been told I was too young and even if I do have endo it would not be that bad. But whatever it is I am going to find the cause of it.
hi there Jordan. Firstly, just wanted to say thank you for being here and sharing with us what you are dealing with. We are so sorry and saddened to hear of the pain you have been experiencing. And it angers me how doctors just don't take it seriously. I know I cannot diagnose you, but you I can say, your symptoms sound so similar to mine at that age. It did take me years to get a proper diagnosis, but that was because I had known nothing about endometriosis at that time. Hormones and BC just masked all the symptoms for me as well and I wasn't actually feeling 'better'. The only way to truly diagnose endometriosis and is the 'gold standard treatment' for right now, is surgery. I would suggest trying to search for a GYN who is skilled in the knowledge of endometriosis. Or, even better, I would absolutely try looking for an endometriosis specialist. If you join Nancy's Nook- it is a FB group- she lists a bunch of specialists, you can search for in your specific area or surrounding area. I want you to know this- you are certainly not alone. All of us in this community are here for you. Please reach out anytime you need. And I love your attitude, never ever give up <3 You are a strong warrior, and you will get answers and relief you so deserve. Like I said, please reach out anytime you need! -Kimberli (team member) Thank you all for your comments. I was wondering how do I explain to my mom the pain I am feeling and help her understand? I don’t know what is wrong with me so I can’t say this is what is going on but I have had a lot of endo symptoms and pain. And I went to the doctors about shortness of breath and chest pain and the Docter said I was fine and it was just anxiety. But know I have worse pain when working-out like when I was just going really slow on the trade mill my heart rate was at 114-128 and I felt exhausted, just like when I walk and do simple stuff like try to clean and move thing I just be so tired and my mom just think I am being lazy. And my other symptoms I had already explained. And my mom just said she had pain when she was on her period too and she had to deal with it.😭😭😭😭😭😭
of course. We are always here for you. It can be SO hard to explain our pain to someone, who doesn't have the slightest clue of what that pain truly feels like. Even if they are a loved one. I know my family and husband, while all super caring, they truly don't understand the daily pain, no matter how much I try to explain to them. What I have found helpful though, is sharing articles and stories with them about this illness, what others are dealing with, etc. It has helped them better understand a bit.
I am sorry you are having trouble with your mom being able to understand. It certainly doesn't make things easier. Every time I ended up in the ER with pains, I felt the same way. They would dismiss me as nothing wrong and my mom always thought I was just trying to get out of school. It truly is sad 🙁
However, like I said, sharing articles about others journey with this illness, has really helped her begin to learn what my journey is like. Here is an article that may be helpful to share https://endometriosis.net/living/explaining-symptoms
https://endometriosis.net/living/normalizing-pain
https://endometriosis.net/living/validating-pain
https://endometriosis.net/clinical/pain-causes
Hopefully some of these are helpful. Sending you big hugs <3 -Kimberli (team member)
I'm so sorry to hear you're going through this. Unfortunately, a lot of endo warriors have heard what you've heard. My symptoms started when I was 13. They actually peaked (and continued to be really bad after that) when I was in high school, but I didn't get diagnosed until I was 24. My endo wasn't "that bad" when I had surgery, but my pain sure was! Hormonal pills never helped my period issues or other pain, and they also affected my mood. I agree with Kimberli, I think it could really help if you saw an endometriosis specialist. You can search from someone through icarebetter.com — Nancy's Nook will refer you to this site. I'll also leave you some articles for how I manage period pain/migraines/etc in case they're helpful! Wishing you well! - Keri (team member)
https://endometriosis.net/living/period-pain-treatment
https://endometriosis.net/living/symptoms-experiences
https://endometriosis.net/living/find-doctor-specialistLike Kimberli and Keri, I'm so sorry to hear you're experiencing these symptoms. But I'm glad you're not going to give up and you're advocating for yourself to find answers. Like Kimberli, I experienced similar issues at that age and they waxed and waned as I aged, but definitely got worse in my late 20s. I sincerely hope you're able to find the answers you need and deserve. I strongly second Keri's suggestion to check out Nancy's Nook. It helped me a ton. ~Katrina, Endometriosis.net Advocate
