June 8, 2020
I have stage II endo, and was diagnosed in 2016. I have awful 14 day long painful heavy periods. Hormonal birth control gives me extreme anxiety, panic attacks, and night terrors. I also have PMDD, and chronic migraines made worse by hormones. I’m only 28. My dr. Said that a hysterectomy may improve my life. Has anyone else had to have one when they were so young?
June 9, 2020
Hello @pandapawz. Firstly, I am sorry you’re having to suffer through all of this. It really sounds so very tough, and I can identify with everything you describe, from the long periods to the anxiety and the PMDD.
A hysterectomy is tricky. I say this in the sense that it is an important procedure, and one that comes with no guarantees. In our community we have many discussions on the subject. Some patients have experienced a decrease and/or almost disappearance of their symptoms, while others haven’t been so lucky. Depending on the type of hysterectomy, you may experience an early menopause or take HRT (Hormonal Replacement Therapy). It is a huge decision, one only you can take.
Would it be possible for you to talk to a different doctor? I’m somewhere between stage III and IV. For years, I stayed away from any hormonal treatments because of exactly the symptoms you described. But my specialists put me on the pill version of the provera shot, and I have found so much peace. It has given me my life back. I do take a lower dosage than the one they recommended though, but I barely bleed and the PMDD I suffered (which as you know, is horrid) has gone away.
Please feel free to visit our facebook page and look up any conversations on hysterectomies. And maybe consider getting a second opinion. Most importantly, remember that it is your body, your decision. So only go for what feels right for you.
Do reach out to us if you need to. We are here for you 😀 - Jessie (team member)
June 9, 2020
I’m currently on Orilissa, but I am coming up on the two year mark. The dr that I am currently seeing is, unfortunately the 10th that I have seen and the first who didn’t just throw birth control at me. It took me years to find a dr who didn’t just dismis me as having bad periods because I was young. The dr who did the laparoscopy to diagnose did not do any follow up care beyond birth control, which I reacted to violently. When I called her office begging for help with the reaction, I was told to keep taking it because it couldn’t be the meds. Funny, because after I stopped the meds I was better. The next doctor would only consider hormones as well, and then I ended up with the one that I am seeing now.
October 28, 2020
Hi there @pandapawz, just wanted to check in and see how you are doing. Hoping you have been able to find some relief <3 -Kimberli (Team Member)
July 10, 2020
Hi there! I’m also 28, with very similar problems. I was so desperate that I was also thinking about hysterectomy. For my last period I tried out CBD oil, and it’s just sooo much better I still cannot believe it. I take it two times a day. I’m not saying that my period is not painful, but significantly improved. Before I was crying, vomiting, even fainting from the pain....I really recommend you to try it out before this drastic surgery.
November 11, 2020
Hi Kimberli! I am very happy that my calculations are helpful and thank you for your reply 😀 I hope you are doing well!!
November 17, 2020
Thank you so much! 😀 -Kimberli (Team Member)