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Hysterectomy

I just found out that I will need a hysterectomy. I waited to see the doctor for 2.5 hours to find out that they will be removing my cervix, fallopian tubes, and uterus. One ovary may have to go, but one looks completely clear which is a relief. I honestly did not expect this news. I thought that they would try to save my uterus, but the endo is so severe that they will need to remove the whole thing... I will be 30 this month. We have a 2 year old and didn't really plan on having more children, but the thought of that option being completely taken away really hurts my heart. My husband is a farmer so he is away right now and we don't see him much at all during this season. I feel so alone. I am letting myself feel all of the feelings while I process this news but today is a HARD one.

  1. I can understand how difficult hearing this news is for you, especially having to go through it alone right now. I'm so glad you reached out here, because we are here for you! It is completely different to make the choice yourself not to have another child rather than a doctor telling you that this is the only choice. It's good to see you write that you're letting yourself have all of your feelings.


    I have had a partial hyst (I still have my uterus, but no ovaries or tubes) and it is a major surgery and life change. There are lots of excellent resources here, when the time is right, to help you learn about preparing for surgery and what to do afterward. I wish you luck! When is your surgery? ~Katrina, Endometriosis.net Advocate

    1. thank you for your support. My surgery is going to be January or February when my husband is available to do full parent duty.

    2. I hope you will experience relatively little pain and symptoms between now and then. Please let us know how it goes. ~Katrina, Endometriosis.net Advocate

  2. I'm sorry to hear you're having a tough time. I don't know how you feel, but we're here to let you know you're not alone. A hysterectomy is definitely a big decision. My doctors have suggested I get my uterus out (I have terrible period pain and likely adenomyosis), but I don't feel I'm ready. When I have big decisions like this, it always helps to get a second opinion. That's not to say that another doctor won't come to the same conclusion. But in my experience, it helps me understand why I need a certain procedure in the first place. And that gives me some comfort in knowing I'm doing what's best for me.
    And like Katrina said, there are definitely good resources here to help you prepare. Reach out if you have any specific questions. We'll do our best to help 😀 Wishing you well! - Keri (endometriosis.net team member)

    1. thank you for your support. I don’t know that I’m ready to have a hysterectomy but I know that getting pregnant for us is challenging. I have to have a c section and now I would have to deliver in a different city. With my husbands schedule we are limited to a time that we can conceive where he can be home to help me recover and everything. I have already had a miscarriage and I am now at a higher risk of another one. I feel like another pregnancy is not in our cards. I have pain at least 20 days of the month and it will only continue to get worse. I will be seeking out a second opinion but even that will be challenging with 2 year wait times to get into see anyone here.


      I just feel defeated. 😔

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