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Advice needed

Hello! I'm a 30yr old who has had many surgeries for adeno/endo (stage IV). At 22 (2011) I had a TAH (left my ovaries but took everything else). Later 2011 had LoA (lysis of adhesions/endo), 2012 had R ovary/appendix/stomach wall muscle removal due to endo, 2012 LoA, 2013 LoA, 2013 L ovary out, 2014 LoA x2. Went 8 mo without any HRT before going on 2mg estradiol, and the endo still came back. Have another LoA scheduled in Dec.

Anyone my age have luck going off all HRT? I don't want to because of my age, but can't keep doing these surgeries! 5 have been hip to hip incision the rest laparoscopic. Any bad risks being hormone free at age 30? I worry of the long term risks. Thanks in advance!

  1. Hello , thanks for reaching out. Let me just say that it sounds like you’ve been through so much, and that I feel your pain, and fatigue, because we are living similar lives. When I turned 28, I had decided I was going to live hormone-free. I did this for almost a decade, but it meant living in immense pain, and suffering from PMDD which limited my life enormously. After my endo diagnosis, and several surgeries I decided I needed a break, emotionally, so I could carry on with my life. I wanted to be able to do what other people do etc. I wanted the suffering to stop.

    So I went on progesterone, and it took a bit of trial and error until I found the right combination. It’s not perfect, not a permanent solution, but it’s given me 10 months of no periods and A LOT of relief. I have several friends of mine on HRT, living their lives fully, and supported by their doctors.

    Hormones have a reputation of being a bit of a scary subject, especially with past research that has linked them to cancer and the like. But the hormones that are available to us these days, come in so many different forms, and many are low risk. Obviously, it depends on how our bodies react to them.

    I take the pill form of the provera injection, and I take a lower dosage than the one my endo specialist recommended. I did this after asking fellow endometriosis patients. It is working for me, for now.

    I hope this helps, and that you figure out what works for you. Please know that we are here for you, so reach out whenever you need 😀 – Jessie (team member)

    1. HI - I just wanted to reach out to you + see how you were doing. Hopefully you have figured out something that works for you and you are doing well. Just letting you know we are thinking of you + here for you! <3 -Kimberli (Team Member)

      1. Hi there warrior. I just wanted to stop by and see how you have been doing! Hopefully well. Sending hugs your way! -Kimberli (endometriosis.net advocate)

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