Lori,
Thank you for the support , I truly appreciate any and all comments. The tumor I have is growing according to the 2 CT scans ( Sept.2023/May 2024). Not a lot but stil concerning as it is large and has encompassed part of my colon. My Primary care Dr, who I have been going to or over 20yrs, will not help and said its beyond his expertise. The surgeon I have for my colon, is excellent as is the gyn oncologist, as if it was not for him being very cautious, I would not have had the colostomy that
was absolutely necessary after reviewing the pictures of the CT scan. He originally was going to do a hysterectomy in early December but after seeing the pictures said no it was imperative that I get this colon fixed. Hence he referred me to the colon surgeon. That was a blessing as I was months every three day in bed with excruciating pain after this GI dr, had me on every laxative known. That original gi dr almost killed me. He sent me to hospital and said I had to have my gallbladder removed. I dont think he every bothered to review those findings. That hospital gave me a list of doctors that I should be seeing I saw my regular ob gyn and she had the ultr sound done and at that point sent me to the oncologist I have and the rest is what happened to date. I weigh 101 lbs from132 that I use to be. So my reason for cancelling my july surgery and the fact that as good s this oncologist is I dont think he ever did this type of surgery, and every thing I read from all over states that it is a gyn's worst nightmare and the success of this, is dependent on finding a dr. who is skilled at this proceedure as it takes a specialist for every organ involved to be on hand. when I saw my oncologist few weeks ago I had already had pre admission testing but felt my body would not survive this 5 hour operation.He did not say what would happen if I did not have the operation only that either way was a risk.I truly thank you for sending me that link and will let you know if anything materializes . I am in New Jersey but will travel if necessary.
Sincerely
Betsy