So I've been through the medical wringer for a while now. Two yrs ago docs were convinced I had Crohn's disease, but turns out it was only severe SIBO - to which they threw up their arms and admitted ignorance toward the underlying condition. "Maybe IBS?" They said, even though IBS does not impact the function or motility of the organs. They even detected potential inflammation in my ileum during an MRI (ileum was my primary pain point at the time) but because there was no inflammation *inside* my intestines, they ruled the results as erroneous which felt like a slap in the fact, honestly.
I took some antibiotics which did help for a while - even my horrible period pain seemed to have taken a break. But distension and cramps are creeping back every month, so I went to an OBGYN for a second opinion after reading bout Endo and its common misdiagnosis as SIBO/IBS.
Well, she diagnosed me I guess? She said, given my history and symptoms, that it sounded like endometriosis and that she wouldn't hesitate to begin treatment. I start birth control this week (which I have only taken once, briefly, ten years ago). I am appreciative of the fact that she believed me and wanted to take action so quickly. But I am also skeptical. Can I really be diagnosed based only on my word? Shouldn't there be testing or is she saving me the trouble? After so many years of endless tests and "healthy" results, this feels so unnatural and it's taking a lot of time to process. Maybe I am just in disbelief that my brief description of my pain was enough - that it is so much worse than I thought and whatever I thought was "normal" menstruation is so easily recognizable as a very particular disease. I don't know, I'm kind of shocked.
I am also really nervous about taking birth control again, but that's a different post altogether.
How did you get diagnosed with Endo? Did you experience similar states of doubt and shock? What kind of testing did you do, if any?