Desperate
Hello,
I like so so many of you feel like I am stuck in a loop and completely helpless and not sure what to do at this stage. I was diagnosed with Endometriosis three years ago and had a laparoscopy to remove the tissue found on my bladder close to my pelvis. After the surgery I have a range of very strange issues, most paticularly the feeling of a constant UTI (that wasn't ) amongst other ranges of vaginal issues.
Up until about 6 months ago I have been managing with semi painful periods. However for the last 6 months I am absolutely beside myself in pain for 2 weeks out of the month. I suffer from leg pain, pelvic pain, sevre brain fog for about 10 days before my period. About 2 days before I start bleeding I feel like I am losing my mind, I am irritable, lonely, angry, depressed, anxious, don't sleep, barely eat and have no energy and cannot focus, work of socialise. I find it hard to get out of bed.
I have spoken to my GP several times about this and like so many she has suggested to start taking Dienogest 2mg+ Ethinylestradiol 30mcg to see if that will help
I have been hesitant to take any medication or hormones for so long but am now thinking I have no choice.
I have not been back to the gyno or for any further ultrasounds since the initial lapro.
Does anyone have experience with this treatment and can anyone suggest if I should do anything else prior to starting to take this?
I am desperate and lost and not coping with the knowing I am going to be in pain and feeling sick for 2 weeks of every month
Hi
. I see you are new to the community. Welcome! My heart goes out to you. Endometriosis can be such an unpredictable disease and each journey is unique. It's often hard to know what to expect and how to treat it. Have you ever seen an endometriosis specialist? The hormones your GP recommended are commonly used to inhibit tissue growth, but there are lots of other options as well, and you'll want to find one that is most effective. A specialist might know more about what's right for you. I couldn't find anything in our archives specifically about the combined dose of ethinylestradiol 30 microg and dienogest 2 mg, but I did find this article about low progesterone and endometriosis that might help: https://endometriosis.net/clinical/low-progesterone. You might also want to ask for thyroid tests. Endometriosis is an autoimmune disease and, when you develop one autoimmune disease, if often opens the door to others, such as thyroid disease.
The inflammation that comes with your period might be making some of your symptoms worse as well, especially the brain fog and pain. Here is an article about alleviating endo brain fog that might interest you: https://endometriosis.net/living/brain-fog-tips. We also have lots of articles about anti-inflammatory diets, teas, etc., that you can check out. I hope some of these links help and that you consider seeing a specialist even if you have to travel a bit. Endometeriosis can be complicated and you deserve the best of care. Keep us update if you don't mind. Best of all wishes. - Lori (Team Member)
