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Rough Year

I’m 20 years old and had my first surgery almost 6 years ago due to a cyst on my fallopian tube. My surgeon ended up having to remove my tube due to it being covered in endometriosis and severely deformed. Fast forward 2 years and I’ve had irregular heavy periods. I was on the pill for the a year or so but that wasn’t helping with the irregular periods. I then tried the nexplanon and that worked for a year before I had severe migraines and ended up in the E.R.

Finally a doctor that validated my pain!

The past year has consisted of endless E.R visits, being on Orilissa (worst decision of my life) and many types of birth control. Today (11/25/19) I met with a doctor who actually listened to me and decided to schedule another surgery for early next year.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Endometriosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • peliconee13 author
    4 days ago

    Well I had my surgery yesterday. Everything went good. Not waiting for February 3rd to figure out what our next step is and what the doctor found

  • JoBodner moderator
    2 days ago

    Great to hear from you! Wonderful to hear that everything seems to have gone well. We are all anxiously waiting to learn more after after 2/3! Hope you have a restful weekend. Be gentle on yourself & look forward to hearing back from you again soon.

  • peliconee13 author
    1 month ago

    Update:12/12/19. My surgery is set for January 15th, 2020. Which is awesome because yesterday I started having cramping up my cervix which I imagine is what contractions feel like.

  • JoBodner moderator
    1 month ago

    Just a few weeks!!! Fingers crossed no other pesky & difficult symptoms creep up between now & then! Thanks for this update & look forward to hearing back again.

  • peliconee13 author
    1 month ago

    I will be getting a laparoscopy. The doctor will be removing any endometriosis he finds. If for some reason its really bad on one of my ovaries or my remaining fallopian tube he will try burning it unless it is too risky with me being so young and wanting children in the future.

  • JoBodner moderator
    1 month ago

    Hi @peliconee13, Thanks for this update! We were curious if was indeed a lap. We would love to hear how things progress & how everything goes. Here is a link to some of the resources we have for a laparoscopy, you can check them out here. Great hearing from you again & we look forward to hearing more from you!

  • Endo Warrior moderator
    2 months ago

    Hi @peliconee13, thank you so much for sharing your story with us and I’m so sorry to hear it has been such a difficult journey. It’s so discouraging that doctors still don’t take our pain seriously. It sounds like you received some bad advice regarding pain medication and hormone therapy as well.

    I’m glad to hear that you are finally getting surgery next year. Is it a laparoscopy? Do you know whether the doctor is planning on excising any endometriosis he finds or will it just be an exploratory surgery to begin with? I really hope this will bring you the relief you need. Do keep us posted and let me know if there is anything you need help with or if you just want to vent.

    Christina (team member)

  • JoBodner moderator
    2 months ago

    Thank you greatly for taking the time to share everything that you have been going through this past year. You have absolutely been enduring a lot, but it is so encouraging to hear that you found a supportive doctor who really listened to you! I am sorry to hear that you be undergoing yet another surgery, but I am sending all positive thoughts your way that this surgery will FINALLY give you the relief that you are in great need of & so deserve! Do you mind me asking what type of surgery you will be having? Do keep us posted & check in when you can. Sending hugs & here is to what will hopefully be a better year ahead.

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