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Feeling much better now…

My name is Iris and I am 42 years old. I have dealt with menstrual problems of many varieties since I was 15 years old. My OBGYN alluded to the fact that I had endometriosis when I was 28 years old, due to multiple symptoms of the disease. I had multiple miscarriages and a molar pregnancy after the birth of my oldest daughter. I had her when I was 20. I was able to get pregnant again when I was 29. This time, I was pregnant with twins.

After having the twins, I really started having problems with my endometriosis. I would bleed for 3 weeks straight and then quit for a week and start bleeding again. I was anemic due to the blood loss. My doctor performed a uterine ablation in 2013. This helped until 2017. My endometrial lining started to grow back. Because of the scarring from the uterine ablation, the lining that was sloughing off had nowhere to go, so blood was getting trapped in my uterus. The pain was so intense that I would almost pass out. It felt like someone was tightening a wide belt around my midsection and cinching it until they were about to cut me in half. I dealt with this pain for almost a year. I lived on a heating pad and ibuprofen. I finally had a complete hysterectomy in 2018. I had scar tissue, blood trapped in my uterus, uterine fibroids, ovarian cysts, and endometriosis. The endometriosis was on the outside of both sides of my uterus. I am feeling much better now. A year after surgery and I wish I could have had the hysterectomy years earlier.

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Comments

  • Keri Wiginton moderator
    3 months ago

    This sounds like you’ve been through a lot! Endometriosis often comes back after surgery. And surgery increases scar tissue. So your experience probably resonates with other people. Thank you for sharing your story. And I am so glad to hear that you feel better. I’m sorry you couldn’t have resolved it sooner! – Keri (endometriosis.net team member)

  • Jessie Madrigal moderator
    3 months ago

    Hello @isimmons ! Thank you so much for being so open, sharing your story with us. You have been through so much, while bringing up your kids (and OMG twins!) and I have nothing but admiration for you. I am so happy to read that the hysterectomy has helped with your symptoms. We need more stories like yours! A hysterectomy is such a hit and miss form of treatment, and whenever I hear happy stories it just gives me so much hope.

    I wish you and your family a lifetime of good health. Thanks for being a part of this community! – Jessie (team member)

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