Embracing Life with Chronic Health Issues

Hey, I'm 42. From childhood, I endured severe pain, especially around my periods. Doctors frequently dismissed the pain, attributing it to IBS, and even in 2002, my laparoscopies came back clear. Just ten weeks later, at age 19, I experienced an ectopic pregnancy. Between then and age 23, I constantly went to appointments. I was trying to find answers. Throughout my life, I often felt invalidated; even my father called me a hypochondriac and suggested I seek psychological help, despite the very real physical pain I was experiencing.

Finding a diagnosis

After experiencing an ectopic pregnancy at 19, I spent over a decade enduring persistent discomfort and frequent hospital visits. At 23, I was finally diagnosed with severe interstitial cystitis and an overactive bladder, which explained much of the constant pain I had endured for years. While having a name for my suffering brought some relief, I soon faced additional health challenges, including painful periods and ovarian cysts.

Early surgeries and persistent challenges

By the age of 28, I underwent surgery to remove my bladder and the artificial neo-bladder lasted only five months before the pain returned. In 2016, the neo-bladder was removed, and I underwent urostomy surgery. Over the years, I also faced severe gastrointestinal issues, including constipation, and doctors often dismissed my concerns about weight gain in the emergency room.

Receiving compassionate care

Things began to change when I was referred to a lower GI specialist. After submitting a video of my rectal prolapse, I finally received care from a compassionate surgeon, who agreed to perform a colostomy. While this surgery offered some relief, the lingering pain and complications—including a parastomal hernia and multiple subsequent surgeries—continued to challenge me. By 2023, my remaining large colon was removed.

Discovering Endometriosis

During these later evaluations, extensive endometriosis was finally discovered. Doctors finally discovered extensive endometriosis, shedding light on years of unrelenting pain they had overlooked. I also faced additional health challenges, including fibromyalgia and low Vitamin B12 levels. Yet, I found strength through pole fitness, reclaiming my body and inspiring others along the way.

Refusing to be defined by health struggles

Despite facing numerous health challenges, including chronic pain, surgeries, and the possibility of having my rectum removed, I refuse to let my circumstances define me. My journey has been long and fraught with misdiagnoses and a lack of understanding from medical professionals regarding the severity of my conditions. Early on, doctors dismissed my symptoms as IBS, leaving me to struggle with debilitating pain that made me feel unheard.

Resilience amidst chronic pain

Each new challenge—from painful conditions to major surgeries—brought moments of frustration and anger. I especially resented how long it took for others to recognize my enduring pain. However, I have also found resilience in these experiences. Living with multiple health issues, including fibro, arthritis, and chronic bronchitis, has not held me back.

Living fully despite obstacles

I hope to inspire others to pursue their dreams, no matter the obstacles. I refuse to let my conditions stop me; I choose to embrace life, love, and laughter. If I can navigate these challenges, I truly believe anyone can. So go out there and chase your dreams—live fully, love deeply, and laugh often!