My Endo Story

By harpseall

1 min read

Last updated: March 2020

I have been living with endometriosis for the last 15-20 years. I have been desensitized from all sorts of painkillers due to the frequent use because of my endo pain. Multiple ER visits and one surgery. There are days when I can’t even walk from the pain let alone play with my 5 yr old twins :( always looking for some type of relief on this bad days.

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Jessa F Moderator
<inline-mention user-id="2053088" username="harpseall"/> I am sorry you are in so much pain. It sounds so tough. Just like you, I had to give up certain types of painkillers, because my gut took a massive toll from overdoing them. Have you every tried using a TENS machine? It does provide me with a lot of relief. I am attaching a link on this type of gadget, I hope it helps. <a href='https://endometriosis.net/clinical/tens-pain/' target='_blank' rel='noopener noreferrer ugc'>https://endometriosis.net/clinical/tens-pain/</a> In the meantime, do reach out to this community whenever you need 😀 – Jessie (team member)
1. Kimberli Davino Moderator
 Hi <inline-mention user-id="2053088" username="harpseall"/> , just wanted to reach out and see how you are doing! -Kimberli (Team Member)
2. Kimberli Davino Moderator
 <inline-mention username="harpseall" user-id="2053088"/> Hi! I cannot believe it has been a year since we last commented with each other. I just wanted to swing by and see how you have been doing? Hoping you have been able to find some relief and have been feeling well! Sending you good thoughts and hugs warrior <3 -Kimberli (team member)
Endo Warrior Moderator
Hi <inline-mention user-id="2053088" username="harpseall"/> , I’m so sorry to hear how much pain you’re in despite the surgery. Sadly endometriosis is a chronic illness for which there is no cure, but many women have found lasting relief with the appropriate surgery. Maybe it would help to see a different doctor? If you receive the right surgery you should be free of symptoms for at least a few years. I really hope you find the relief and treatment you need. Christina - team member
Kimberli Davino Moderator
So sorry to hear of all this pain you are still experiencing <inline-mention user-id="2053088" username="harpseall"/> . May I ask, have you seen an endometriosis specialist and was surgery excision? While I know there is no cure for endometriosis, or real treatment that will prevent it from coming back, or stopping pain, I will say having excision surgery with a specialist helped tremendously. I have also found a change in diet, while extremely hard to do sometimes, has been super helpful with managing pain and flare ups. Taking out certain things like dairy, soy, sugars, -just to name a few. I have found CBD products to be helpful as well. Along with a lot of light walking and moving around. Also to chime in on what Jessie had said, TENS unit works wonders for me as well. I definitely love to use it when I am in pain. Hoping some of these can help and you do end up finding some sort of relief! Have a great weekend <3 We are here if you ever need to chat. -Kimberli (Team Member)