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What do you wish more people knew about life with endo?

Endometriosis awareness month will be here before we know it! As awareness month approaches in March, it can certainly be helpful when others know and understand more about the condition that is Endometriosis. So, we ask you, our community members, what do you want more people to know about living life with endo?

Community Answers
  • Endo Warrior moderator
    9 months ago

    That endometriosis pain isn’t confined to menstruation. It’s a common misconception that people with endometriosis only suffer during their period, but for me endometriosis pain was constant. The growth on my bladder made it painful to go to the toilet, I had pain during intercourse, regardless the time of the month, and I had constant back pain and fatigue.
    I also would like people to know that, like with any chronic illness, there are good days and bad days. I really struggled with social commitments, because some days I was able to party the night away, and other days I wasn’t even able to get out of bed. And there was no way to predict what each day would bring. Which made some people accuse me of “making it up”, because why was I not always in pain?
    Christina – team member

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