Should I go for private treatment because of lengthy waiting lists?
Hi,
I have been suffering with endo symptoms for over 2 years and have finally got them to confirm my suspicions when speaking to Gynae. They have referred me but that waiting list for laparoscopy/ removal is 4 years because i need a specialist. So i looked into the treatment privately and it will cost 20k plus. I really don't know what to do as i want this thing gone but that was also my house deposit money 🙁
They haven't really given me any treatment apart from the hormonal pill I have all the usual symptoms but endo is also really affecting my bowels and that really worries me.
Any experiences, advice would be greatly appreciated
Hi there. Firstly, so sorry you are dealing with all of this. I know it is so exhausting and frustrating. It is crazy to me the amount of money treatment can be and how long proper treatment/surgery could take for us to receive. Have you checked out Nancy's Nook? It is a group on FB - she lists out a bunch of endometriosis specialists that you can seek out in your area or surrounding area. Sometimes, if it's possible, you may have to travel a little way but could be worth it if it means getting you in sooner. You can check it out here if you have not yet already: https://www.facebook.com/groups/418136991574617
About going privately for treatment, at the end of the day, that is absolutely your decision. If you find there are just absolutely no other options, you don't want to wait that long and you feel you can make it work, maybe it would be the best option for you. But only you will know what is best for you. I had a surgery booked a few years ago and when I found out it was going to be almost 30K, I had to cancel and go back to the drawing board. I just, didn't have the money to do that for a surgery that wasn't 100% promised relief.
I know the hormonal pill can help here and there with symptoms; it is definitely more so like a mask. But if it helps manage symptoms for now until you can receive surgery, then it may be worth it! As for endo effecting the bowels, this is my current state right now! I know it is so scary, painful and frustrating. I think the best thing that has helped me with my endo and bowels is just being very mindful of what I eat. I have removed a lot of foods that seem to bother me and also take supplements to help my gut/ bowels. However, I always recommend consulting with a doctor before doing anything like that. As everyone is different and what works for me, may not be exactly what works for you. But as a whole, diet change can be very helpful for those with endometriosis. It is just a matter of what that would look like for you.
I know this is a lot so feel free to reach back out with any questions you have. I do hope you get care and treatment sooner rather than later. We are all here for you in this community though. We understand exactly what you are dealing with dear warrior, you are not alone <3 -Kimberli (advocate)
