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Endometriosis and chon contraceptive

Hi,

I live in Europe. I have chocolate cyst. And never had laproscopy, just MRI and blood test.
I have constant sharp burning pain. I can’t sleep at nights.

My gynecologist told me that I have to use combination pills until menopause. She prescriptbed me Microgynon 30. I read about the side effects of the pills : blood clots, breast cancer etc.

Are you also on combination contraceptive with estrogen? What kinda medication do you use? What is the dosage of estrogen in your medication?

  1. Hi there. Firstly, we are so sorry you are dealing with such pain. We know that is NO fun at all 🙁 My doctors have tried pushing hormones and pills on me, but I am not keen on those side effects, so I keep denying them. I wish I could be more helpful. Hopefully someone else who has experienced something similar will chip in. But I did just want to say, if you are not happy with this form of treatment or don't feel like you are finding relief, I would definitely suggest maybe another opinion if you can. I know it isn't always an easy thing to do though. I had gone through 12+ doctors, and it was exhausting, but it could help you figure out other ways to manage/better options. If you are not a part of this FB group yet- Nancy's Nook- you can join there too. She has a list of endometriosis specialists that you can search for in your specific location and surrounding areas. That may also be helpful for you. I do hope you find relief from the pain soon and don't have any crazy side effects from the meds! Sending you big hugs and good thoughts. Here always for you. -Kimberli (team member)

    1. thank you. Do you use any medication to supress the endo?

    2. I do not! I was on birth control but it was not helping. So right now I don't take any medications. But, I am very mindful of what I eat, which has been somewhat helpful! -Kimberli (team member)

  2. Chocolate cysts (endometriomas) are uniquely painful and I'm sorry you're dealing with them. I had them on and off for 20+ years. Birth control was never something that helped me, and in fact, because I also have mast cell activation syndrome, anything with estrogen was terrible for me. The only thing that relieved the pain was surgery and eventually having both ovaries removed, because they kept making cysts (I had four surgeries). Excision surgery was the best relief; I wouldn't recommend ablation. I don't want to scare you with my story, but I also want you to be aware of your options. I also urge you to get help sooner than later; I had a couple of my endometriomas rupture and I've never experienced worse pain in my life.


    I agree wholeheartedly with Kimberli's suggestion to go to Nancy's Nook and find a surgeon who is an expert in excision surgery and get a consult with them. There are some listed in Europe.


    https://nancysnookendo.com/find-a-doctor/


    I wish you the best of luck with this and an ease to your pain. Please feel free to message me any time and keep us posted on how you're doing. ~Katrina, Endometriosis.net Advocate

    1. Thank you. Are you still any medications for endometriosis?

      The gynecologist told me that the pills could supress the

      1. Hi there. Kimberli and Katrina make good points, especially about seeking a second opinion. And I'll chime in with my experience. I took combination birth control — pills and the vaginal ring — and it did not suppress my endometriomas. I had two surgeries to remove them WHILE on birth control. I have not been on hormonal suppression for 12 years, and I have not had a chocolate cyst recur (or stick around long enough to show up on an ultrasound) in that time. I did have excision surgery for the first time in 2021, and my doctor removed 1 spot of previously unfound endo underneath my uterus. He said my ovaries looked "free and clear." Wishing you good luck finding the right doctor and treatment plan! - Keri (endometriosis.net team member)

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