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Endometriosis and a vaginal onion smell

For about the last year I have had a vaginal onion smell. It’s not like b.o. it’s like freshly cut onions mixed with cat pee and marijuana. It’s just terrible. I have tried everything possible to get rid of it but it seems like it’s coming from internally so it doesn’t matter what I do, it’s still there. My doctor doesn’t know what it is and has run every test possible. Next step is endo surgery. Has anyone else had this ??

  1. Hi there - so sorry you are dealing with this. I know it must be frustrating when your doctor cannot figure it out. Do you happen to eat a lot of onion, garlic or spicy foods? This can sometimes be a cause of odor like that. It could also just be sweat - maybe try wearing more breathable clothing. I know your doctor has run every test, but did they check for all possible bacteria's and infections? Hoping you are able to figure it out soon! Sending good thoughts. -Kimberli (team member)

    1. I have tried not eating onion or garlic for weeks and it’s still there ! I have tried cotton underwear, no underwear, it’s still there ! No bacteria or infections !

    2. just wanted to check in and see how you are doing! Hopefully well 😀 -Kimberli (team member)

  2. Hi , seconding what Kimberli mentioned, I'm also sorry you are going through that. My heart is going out to you especially since your doctor is having difficulty pinpointing what it could be. I agree with that diet could play a part in that for sure. Just like when you eat asparagus or other foods, it can make your urine smell much stronger, other foods can have the same effect on your body as well. Might be worth looking into as well as changing up the clothes or undergarments you are wearing to be more breathable if you haven't already. It might also be worth going for a second opinion if you feel like your doctor has exhausted their testing. In any event, no matter what, you have our support here and I am sending out all the best vibes your way to get some answers. I'm really glad you reached out and I'm really glad you're here with us in this community. Keep us posted on everything please! 💛 Warmly, Kayleigh, Endometriosis.net team

    1. My doctor determined that since my PH was so high, my body was extremely alkaline, so she recommended I eat more acidic foods and increase my vitamin C levels and it seemed to fix it !! Some days my issue will come back if I’m not able to eat enough vitamin c or if I eat too alkaline. I’m really working on trying to introduce foods that are healthy but also more acidic into my diet !

    2. Hi , thank you so much for writing back in to us. Wow! So the alkalinity of your body was causing that. That's really interesting. If I may ask, how soon into taking the Vitamin C did you notice a difference? I am SO SO glad that you have found something that is working for you. This is what I love about this community. Everyone coming together and sharing information and knowledge. I'm really glad you are a part of this community with us 💛 Kayleigh, Endometriosis.net team

  3. Hello ! I believe it was just a few days after, like I said, I’m normally a really healthy eater so I’ve found that I have to eat A LOT of vitamin C and acidic foods in order to notice a difference and keep the problem gone ! I definitely don’t feel as guilty treating myself to some French fries or potato chips anymore !

    1. well we are absolutely happy to hear that you think you figured it out! Hope you have been having a great week and feeling well warrior! Hugs 😀 -Kimberli (endometriosis.net team member)

  4. I have this same issue, and doesn't seem to be related to anything I or Dr can pinpoint. I practice good hygiene, wear breathable undies (or simply go commando), and I'm cautious pwith all products used down there. I have just chalked it up to having a more "fragrant" vagina... I did want to mention that the natural deodorant brand Lume has worked really well for me. It's a product that has been developed for sensitive locations. It doesn't smell great, but once applied I don't even notice the deodorant scent and it takes care of the problem! Just wanted to throw the suggestion out there.

    1. thank you for sharing this suggestion! We are so happy to hear you have found something that seems to work well for you. Hoping you are having a great week so far dear warrior. Hugs to you. -Kimberli (endometriosis.net team member)

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