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Desperately in need of guidance and advice

I’ve had ovarian cysts for years and super heavy periods. Every doctor I went to just blew me off and said that cysts were normal. Until January of this past year when my ultrasound showed I had 4 4cm endometriomas. My ovary was the size of a grapefruit and needed to be removed. I acknowledged this and had my ovary removed at the end of January. I knew I was getting married in July of this year and didn’t want to accidentally get pregnant before my wedding day. I had my IUD removed the day after my wedding at the beginning of July. We’ve only been trying to conceive for three months. But I bought the Mira device so I would have as much data as possible if there was a presumed issue with my fertility. My LH has been super low. My normal regularly heavy period was just spotting last month. I’ve had pain in my only remaining ovary. Tried to talk to my normal gyno about my concerns and the fact that I desired a hormone panel to make sure my pituitary gland was fine and to reassure me that I didn’t already have something wrong with my fertility. He refused and told me we needed more data and that if we’re going to run those tests it’ll be in January. Even though he doesn’t believe I ovulated last month at all. I know my body and I know something is wrong. I want to see a reproductive endocrinologist but not one will see me until I’ve been trying to conceive for a year. My worry is that my other ovary is going to crap and no one will do a basic blood panel or even an ultrasound to make sure I’m okay. Am I over reacting? Do I need to chill out? How can I find someone to help me? I’m grateful in advance for any information or advice !

  1. My former Ob pointed us in the direction of a fertility specialist after I had endometriomas removed a few years ago. I only have one tube thats open and don't ovulate and bat 1000 going into trying to have kiddos and we were successful after several months . this is all with stage 4 endo too. You can do it - I would call a fertility clinic for a consult with a fertility dr over the phone or zoom and see what they say.

    1. thank you for sharing your experience and for being so uplifting towards our members! So happy to hear you have had success! Sending you all the best. Hope you are doing well! -Kimberli (team member)

  2. I don’t think you’re overreacting. You sound frustrated and exhausted, and I believe that those are normal emotions to be experiencing in your situation. Would it be possible for you to see a fertility specialist, someone different to your current gynaecologist? You are within your rights to demand and seek for better treatment if you feel that there are symptoms that aren’t being considered, or you believe something doesn’t feel right. Your worries, feelings and emotions are valid. Please know we are here for you, even if all you want to do is vent – Jessie (team member)

    1. Hi honey. I'm sorry to hear about your concerns. These are normal - I think I'd react the same. The issue is too much important to be neglected. (I wonder why your doctors are so relactant..) Anyway if they all want you to ttc for a year before wanting you through the needed tests, go independently. Nowadays lots of fertility clinics offers free consultations to their intended patients. This is also because the covid nightmare not stepping away. The clinic I've been with BTC manages consultations through skype calls. If you feel like you aren't willing to just wait all this time, then try this path out. Docs there are amazing, I'm sure you'll be helped.
      All the best to you, hugs.

      1. thank you for being so uplifting and helpful towards our community members <3 Absolutely so appreciated. Sending you big hugs. Hope you are feeling and doing well. -Kimberli (Team Member)

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