I hope you are all safe and well.
I'm happy to have finally found somewhere to discuss endometriosis, as i have and will continue to have many questions of it. Reading good news stories is always something that makes me feel relieved, and I'm sure you'll figure that I'm not the one with it, however it is my partner.
She's 36 years of age and was diagnosed with it with is several years ago. She's had a laparoscopy previously. Last week she had a follow up appointment with her Dr, and is set to have another one in the not too distant future.
It is something she was open with when we met and i took it on board. Unfortunately i wasn't to know how bad the pain gets. I still wont know, but watching her curl up, catch her breath and cry altogether is absolutely heart breaking.
I can't do anything to be rid of the pain, i can only be there for her.
I'll talk to her, hold her hand and tell her to squeeze if needs be, stroke her hair, rub her shoudlers just to try and give her some comfort of a kind. Eventually it'll go, but usually she has to have morphine, it gets that bad. Seeing the stomach bloat and go down is a mega obvious sign of it's impact too.
Last Friday she'd been told she could have a
How do you help someone who wants to shut off from the world to deal with it and you're almost scared to death incase something has happened?? Seeing the excruciating pain she goes through is horrible and is well embedded in my head, so being away from her and she's struggling pains me.
She wanted to help some friends of ours get some shopping as they're locked up isolating. I told her, time and time again not to go out and do all that when she's in the amount of pain she was in, especially when this is the 4th day in a row now and she'd had a bad day with work and a call with her Drs receptionist. I probably wasn't helping either by telling her to rest and not worry about someone else, but it was almost getting heated. I couldnt stress enough about her resting!
She's a caring person and she will plod along and deal with it. How? I've no idea!!! But for once i wanted her to not worry about someone else and rest up. Especially if she's had morphine too. We dont live together at the moment, so to make sure she didn't go out putting strain on herself to help others, i went out to get it done. The only reason i wasn't necessarily going to go was because i work mainly night shifts and she's always telling me to get sleep as i dont sleep too well. That's her caring side again. So i bit the bullet and stayed up, because i cant have her shouldering the weight of other people all the time, especially in her circumstances right now.
4 days of pain. She's saying it's getting worse. Her lower back around the side is painful more so. She's got to wait for this operation to come through, as right now it's anyone's guess as to how long it'll be.
So how can i help, More so than i possibly can right now? I read so much inbetween sleeping, working and general life, because it means so much to me to help her out. I tell her all the time she's not alone with this fight and she wont be.
She expresses concern about her weight. I don't, but if she's concerned there again, needs some attention. She likes a drink at the weekend as we both do when together. We have walks too. Is there anything dietary that can be done, such as perhaps a gluten free diet as I've seen something to do with gluten free foods helping? How much alcohol is ideal to have? She smokes but not excessive at all. How many cigarettes a day is best if not being able to totally quit?
Any help is appreciated. When she's in pain she's negative and it's upsetting and it gets put across to me somewhat angrily. I get she's in a lot of pain and as humans we do get ratty when we're dealing with so much.
She's a bubbly little soul who couldn't do enough for me. So how can i give something back before she has an operation however long it's going to take??