Skip to Accessibility Tools Skip to Content Skip to Footer

Stage Four: Finally had a doctor believe me

I finally had a doctor believe me that I have pain every day. I started telling doctors about my symptoms when I was 16. I’m now 36. It took 20 years, and a very heartfelt prayer right before my visit, to get this diagnosis.

I am three weeks post op. after lap surgery. He removed several endometriomas and adhesions. I had Stage 4, which is the worst stage.

I wish I had been more brave with my doctors.

I wish I had insisted on Lap. surgery sooner.

Now all I feel is…everything else in my body. I can pay attention to other parts of myself that before were masked by the Endometriosis pain.

Best of luck to all of us on this journey. I hope we will love and support each other.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Endo Warrior moderator
    11 months ago

    Hi @vtracy21, thank you so much for sharing your story. It is abysmal that it takes women 20 years to get a diagnosis. We are so often told the pain is in our head.

    I feel what you are saying, that you wished you had pushed more for treatment, diagnosis, but that’s the job of a doctor. The long journey to diagnosis is because doctors don’t recognise the symptoms or don’t take women’s pain seriously. So don’t beat yourself up.

    So glad you are here and I hope you will find the support you need. It’s really great to be part of a community of women who know what you’re going through and we’re happy to have you in our midst.

    Christina (team member)

  • Pam Kingsland moderator
    11 months ago

    Thank you so much for sharing your story, @vtracy21. I’m so glad you were able to find such a great doctor, who listened and understood. Hoping you have continued relief. Keep us updated on how you’re doing! Best wishes, Pam (team member)

  • Poll