My Endometriosis Journey

By simmy

2 min read

Hello, my name is Simmy and I’m 21 years old.

I got diagnosed with endometriosis Friday the 7th February after 9 years with pain.

It all started when I first got my period at 12 years old, I always had a lot of pain, and missed a lot of days at school, paracetamol and ibuprofen didn’t help at all. So my mom and I went to the doctor, but the doctor said, “some girls just have worse period pain than others”

Year by year my pain got worse

When I turned 15 I started taking birth control, it helped with my pain for about a year. When I turned 16 I started getting a lot of bowel pain and difficulty going to the toilet. Then one day I woke up with terrible stomach pain, and when I went to the toilet, there was blood in my stool. So I rushed to the doctor. The doctor referred me to the hospital for a colonoscopy, but they didn’t find anything in my bowel, and they told me that it was just “irritable bowel syndrome”. At first I believed them and was happy to get a diagnosis. But years went on and I tried everything the doctor told me would ease the symptoms of ibs, but nothing worked. One day one of my close friends who have endometriosis, told me that we have very similar symptoms. So I went to the doctor and told her about it, she referred me to the gynecologist at the hospital, 3 different doctor did ultrasound’s but didn’t find anything. One of them wanted to do a mri, so I got a mri which didn’t show anything, but she still wanted to do a laparoscopy because of all my symptoms. So I got booked for a laparoscopy the 7th February 2020. The doctor found endometriosis near my bladder and behind my uterus. She burned it with ablation. I was really happy to finally get the right diagnosis after 9 years in pain.

Will I find relief?

It’s been a month now and I feel no relief after my surgery. So I have booked an appointment with a nook doctor in July, who I hope can excise the endometriosis.

Thank you for reading my story. I’m sorry about my bad English, I’m from Denmark and it’s my second language.

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Jessa F Member
Dearest <inline-mention user-id="2059769" username="simmy"/> , please don’t apologise, your English is brilliant. Thank you so much for sharing your journey with us. I am sorry you are still in pain, but healing after any surgery can take a while. It took me over 6 months to feel “normal” after my most recent surgery. I do think that seeing an endometriosis specialist is the best next step you can take. Hopefully you will get some answers, and effective treatment for your current discomfort. I’m crossing fingers for you. Take it super easy, rest as much as you can, and reach out to this community whenever you feel like doing so. We are all here for you 😉 – Jessie (team member)
Keri Wiginton Member
Thank you so much for sharing your story <inline-mention user-id="2059769" username="simmy"/> . Your story sounds a lot like mine. My periods were terrible starting in middle school. I developed terrible bowel symptoms — constipation and diarrhea — in high school. I was diagnosed with IBS many years before a doctor looked for endo. Many of my bowel symptoms persisted after my ablation as well, and I've never had excision. I'm really hoping you are able to get a surgery that provides you with relief. Keep us updated on your progress. Wishing you well! - Keri (endometriosis.net team member)
Kimberli Davino Member
<inline-mention user-id="2059769" username="simmy"/> , I just want to say thank you for sharing your story with us all. I cannot believe how similar our stories sound. For years, doctors kept telling me it was IBS, my colonoscopies were fine + that the pain I was feeling was normal. But I knew none of that was true when like you said, trying everything that was suppose to help IBS, wasn't helping! And to just touch on what Jessie mentioned below, I think you are taking the next best step that you can, seeing an endometriosis specialist. Hopefully they will be able to give you answers and help you find relief. Until then, we certainly will be thinking of you. Keep us posted on how everything goes. Sending hugs! -Kimberli (Team Member)
Kimberli Davino Member
<inline-mention username="simmy" user-id="2059769"/> - hi! Just thought I would swing back around and see how you have been doing. Were you ever able to get in to see a Nook doctor? I hope they were able to bring you some answers and relief, if so. Sending hugs. -Kimberli (team member)