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Everyday is a New Day of Pain

When I was 14-15, I struggled. Then the pain was only during my cycle and the two days before. I would vomit from the pain and refuse to get out of the fetal position on the bathroom floor. Back then, my mom took me to the hospital when it got so bad I couldn’t walk or get put of bed. A nice er doc gave me a shot and a pill. Sent me home with a script until my mom could get me on state medical insurance. Then I went to the obgyn. They thought it could be endo but also thought I was 2 young. So the depo to drop the cycle all together. Now I’m 29. Now the pain is everyday. Now I have cysts that never go away or stop hurting. Along with the constant pain and cramps and all the other like pain with sex etc, I now deal with more debilitating pain from the cysts. I’m still waiting on a definite diagnosis instead of a maybe. I’m still trying to get taken serious and get a Dr to realize when I say I can’t get out of bed due to the cramps, stomach pain, and back pain etc or where anything but stretch pants or leggings rolled below my stomach most days, that I’m not exaggerating or just a “drug seeker.” I need relief at least a few days a month. But I’ll keep dealing with it because what else is there.

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Comments

  • Jessie Madrigal moderator
    8 months ago

    @stef171803 first of all, thank you so much for opening up and sharing your story with us. I am so sorry you have been suffering for so long. I began experiencing endometriosis-like symptoms since my first period. I really don’t understand why some doctors believe that there is an age factor, that you can be “too young for endometriosis”. I really hope you get a diagnosis soon. It took me a very long time to get one, but once I did, I knew the nature of the beast and what I could do to manage it. I don’t know if you do anything for pain relief, but we have some articles on the subject, maybe this are of interest to you?
    https://endometriosis.net/living/flare-ups/
    https://endometriosis.net/living/cbd-oil-1/
    https://endometriosis.net/living/cbd-oil-2/

    I really hope things get better for you. Please reach out to us whenever you need to – Jessie (endometriosis.net team member)

  • Juliana Swaren moderator
    8 months ago

    Hi stef171803.

    Thank you for sharing your story. I’m so sorry that you’re experiencing this pain, and still waiting for a definitive diagnosis- that must be so frustrating! Please let us know how we help you, or further support you. You are not alone in this!

    Wishing you well, Juliana, Endometriosis.net Team

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