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Endometriosis Stage 5

It all started when I was 15 years of age with my first operation to diagnose endometriosis. I was told that I would not be able to fall pregnant which broke my heart, but I knew I had to be strong for myself. Two days before my birthday, I met the man of my dreams. He has ridden this journey of endometriosis with me all the way. I told him I wouldn't be able to give him any children and his reaction was "It's OK babe, we can adopt and have all sorts of options." He was truly my rock that I could lean on at any time.

The unexpected happened

I started hormone replacement probably 1 and a half years before I met my man. My specialist advised me that IF I fell pregnant, he said I would more than likely miscarry or have a preemie baby. So my man and I were only together for 8 months, and I had to tell him I was pregnant. I KNOW WTF! I hadn't had a period for like 3 years. The specialist said this is impossible. I carried my first for 6 months until she wanted to come into the world 4 months early, weighing only 1 pound 13 ounces. Our first was so precious when she was born. She wrapped 4 fingers around her daddy's pinky finger. It was a struggle at times knowing whether or not my little baby girl was going to make it. She did, however, ended up having a heart operation which hasn't stopped her from doing anything. She also ended up with Minor Cerebral Palsy.

How my endometriosis changed my life

After going back and forth to the hospital, I was exhausted and was told by my specialist that if I wanted to have another baby to try straight away (2 kids under 1 scared me so much). 5 months in and I was pregnant with my second girl. She was full-term, born weighing 7 pounds. Two kids before the age of 21 stopped me from doing a lot but not more than my endometriosis did. It stopped me from doing so much, but by the age of 24, I was having a full hysterectomy. I did this as I thought it should help with endometriosis. I was WRONG. It started attacking everything. I am now 46 years old and have had 30cm of my bowel removed, and several other operations. endometriosis is the worst disease a woman could have. In 2021, I had 1/2 of my bladder removed, had stents put in my urethra and ovarian vein as well as a vein coming from kidney to heart. I can know this this for sure, you can help endometriosis symptoms with food and diet but you will never get rid of it.

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