Endometriosis and me: it’s complicated

My name is Jessie. I am a writer living in the South of England, near the coastal town of Brighton, where seagulls are occasionally scary and vintage record stores abound. I have two sausage dogs permanently attached to my hip, a penchant for leopard print and a daily life sabotaged by endometriosis.

My body has been a battlefield since the age of 12, and I was finally diagnosed with complex endometriosis in my thirties. Like many fellow endowarriors, I want to live my life fully but this illness likes to get in the way.

To be fair, my endometriosis has been a somewhat generous beast. While it took both my career and social life, in exchange it gave me chronic pain, a sexy limp, endless medical appointments, two surgeries and the label of “chronically ill”. Like a gift that keeps on giving, each month there are symptoms that weren’t there before, others I’d forgotten about, some that just won’t quit.

However, my illness has also given me a purpose. Since my diagnosis I’ve become heavily involved in spreading awareness for a disease that, although it affects 1 in 10 women, still remains a mystery for most medical professionals.

It has also given me a thirst for life I never thought I had. At my worst – or what I call my “werewolf days” – I’m unable to have conversations, open my eyes or think straight. On my better days I am a slow yet happy runner, I do yoga and will go to any music concert my body will allow me to. I climb up hills with my dogs, write until my brain is fried and use every drop of energy like it’s pure gold.

It’s been a complicated journey with plenty of falls, but I continue to dust myself off and get up again. I honestly wish endometriosis hand’t found me, but now that it’s here, I intend to give it a good run for its money.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Endometriosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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