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EndofEndo?

I got my period when I was 15. My mom knew something wasn’t right so she took me to her OBGYN where they put me on birth control pills. For the next 10 years I continued to struggle with bouts of debilitating pain throughout high school and college, trips to the ER, and countless visits to specialists in Philadelphia, Pittsburgh, and New Jersey. I was always just told that I produced too many prostaglandins, had bad periods, and unspecified IBS. At age 25, I had to have an emergency laparoscopic appendectomy upon which they found endometriosis close to the site of the infected organ. After 2 failed rounds of Lupron at 27 I had another surgery, a 4.5 hour robotic-assisted laparoscopic excision and fulguration of my endo- the extent of the disease was serious. 2+ years later at 30, I am due to have a third surgery later this year because I have had no relief since the last surgery. I am still on birth control pills, 15 years later and there seems to be no relief in sight. I am using my space as a public health researcher to try and expand the field of endometriosis forward by publishing a research study looking at provider awareness and patient experience with endo. I’m hoping to drive the field forward one step at a time to give other people with this horrible disease some light at the end of the tunnel.

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Comments

  • Jessie Madrigal moderator
    9 months ago

    @mbz22 sounds like you have been through so much! I hope that you can find the relief you need soon. The work you are doing is incredible and I, and every endometriosis patient, are so grateful to people like you, driving research forward and hopefully putting an end to this cruel disease. I am sure we will get there. Do keep us posted on everything you do – Jessie (team member)

  • Pam Kingsland moderator
    9 months ago

    Thank you for taking the time to reach out and share your journey with us, @mbz22. It sounds like you’ve been through quite a lot and we’re so glad you’ve found our community! Thank you for also helping to spread awareness, it is so important! I hope your next surgery goes well and recovery is quick. Please keep us updated on how you’re doing. We’re here for you! Warmly, Pam (team member)

  • mbz22 author
    9 months ago

    thank you, pam!

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