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Has anyone gotten an endometriosis diagnosis after a c-section?

Has anyone gotten endometriosis after a c-section? I have 2 kids – both were c-sections. My last c-section was in November 2018. After breastfeeding I got my period back in April. I have noticed a lot of changes. They are heavier, more painful. I’ve been getting sharp pain on my right lower abdomen. Went to my OB and she sent me to do an ultrasound. Didn’t find anything. I also got a CAT scan done and they didn’t see anything but the emergency doctor told me maybe it could be endometriosis. I’m on my period this week and I noticed a new symptom. It hurts a little when I pee. Has anyone got any of the symptoms above?

Community Answers
  • Endo Warrior moderator
    2 months ago

    Hi @anne85, I don’t want to scare you and I’m not a doctor, but after I had my second child by c-section I got adenomyosis, which is like endometriosis, but rather than the growth being on the outside of you organs, it grows inside the wall of the uterus. It can happen when you have endometriosis and the endometriosis is transferred into the uterine wall. That happened to me, as I did have endometriosis prior to getting pregnant.

    Your symptoms do sound very familiar for both endometriosis and adenomyosis. I agree with Jessie that it would be helpful to keep a diary of your symptoms and to push your doctor for answers. Most doctors are reluctant to do a laparoscopy, but I would recommend not allowing doctors to fob you off. You can change doctors if you don’t feel like your doctor is taking you serious.

    I hope you find answers (and hopefully a solution) soon!

    Christina (team member)

  • Jessie Madrigal moderator
    2 months ago

    Hello @anne85. I have endometriosis and have some of the symptoms you describe. A scan would probably not detect endometriosis, since adhesions can hide behind organs, and be located in places that are too deep to be seen through imaging. Which is why laparoscopies are currently the only way to diagnose endometriosis for certain. You can easily have had endometriosis for years and not have developed any life-altering symptoms, in fact many patients don’t know they have endo and continue to happily live their lives. I am sending you some links on how to diagnose this disease.

    It’s important to remember that I’m not saying you have it, but that I live with very similar symptoms, and yes discomfort while urinating can be one of them. Here is some info on the symptoms that can come with endometriosis.

    My advice would be to write all of these symptoms own, if possible note how often they occur and when (sort of a symptom diary). Take that information to your doctor and express your concerns.

    In the meantime, we are here for you, so please reach out whenever you need – Jessie (team member)

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