csksmjhp
"I'm about 4 and a half weeks post OP from a robot hysterectomy. I called my doctor inquiring about this issue, but haven't received a response. I'm not sure if I should be concerned or not. Of course after surgery there was some light bleeding down below, that was expected. It disappeared after 3 days, but then reappeared in my 3rd week post OP. It's not getting better and now I'm experiencing pain like stabbing when I move and burning from time to time when I'm in bed. It doesn't hurt to urinate, but there's always bright red blood. The stabbing pains and burning sensation didn't start at first, it came a few days later after I started noticing the blood was back. I've been trying to take it easy, but it's near impossible in my life. My real question is if I should seek emergency treatment or continue to ride it out till 5 more days till I see my doctor? I need all the input on this I can receive as all other input has left me confused as to what to do. "
I'm 3 weeks post robot surgery for myomectomy, laproscopy, endometriosis removal--I got my pathology report in person at my post-op doctor appointment via them releasing it on the MyChart. Perhaps that is the practice your doctor follows as well. Recommend asking your doctor for clarification. Wish you all the best with your recovery.
"Quite emotional today. I'm the only one in the house still able to go to work and continuously am told it's not good enough! Let alone I struggle with not just endometriosis, but crohn's disease as well. My significant other is supposed to be on my side, but here lately seems to be backing against me. Telling me I'm doing everything wrong, taking too many meds, not exercising enough, blah, blah, blah. I feel like I'm back into a corner all alone. The doctors are passing me back and forth like it's not their problem, it's another doctors problem and I'm constantly suffering. I have no one on my side other than my self. Worst of it, my kids have to listen to their mother being put down and told she's worthless. I'm the one going out risking my life to bring in the measly little bit I can, make dinner in excruciating pain, just to be told I'm worthless and not doing or providing enough. I don't get to sit at home all day and be safe from this virus! I don't get a chance to relax until it's time to go to sleep, and usually I have to make a late night snack for them all too! I'm not looking for comments to leave my home and abandon my life. I'm looking for support. My significant other deals with PTSD and is bipolar but refuses to get help for it. He's a big bad Marine and they don't have these issues in his mind! He does sometimes apologize for what he says and does and admits he has issues. July will be 13 years for us. Our son is 11. I'm strong on keeping our family together, even though his words and emotions hurt me so. I know what it is like to be separated from a parent and already have 2 older children who are separated from theirs. The oldest does still have contact here and there with his, but unfortunately for my daughter it is not allowed for her to have contact with hers. #fml"
Hi there @CSKSMJHP, I can absolutely hear how difficult things are & how much you are struggling. You are certainly taking the right steps & reaching out for support, so kudos to you! I'm sure it can't be easy to voice these struggles. I would encourage you to get the qualified support you deserve! Unfortunately we not licensed therapists, but would you open to exploring therapy? A good first step may be talking to your doctor to see if he/she may have recommendations. I do not have any personal experience with them, but talkspace.com is an online tool that you can maybe explore. Many in the community have shared great success stories from "talk therapy".
I truly wish I could wave a magic wand, share some life changing positive perspective & advice, but I can only say that please know there is always somewhere to turn for support. We are always here to lend an ear & to listen. You have entire community behind you here. Sending you much strength.
Thank you
Hello @csksmjhp I am deeply sorry you’re having to endure so much right now. It sounds like like you have so much resting on your shoulders, like you’re carrying a backpack full of to-dos, responsibilities, your own health, your relationship, and it’s so very heavy.
I am super lucky to have a therapist that helps me deal with the tough, emotional side of this illness - she’s the one that gave me that tip about looking at life’s responsibilities like things you stuff in a backpack and carry everywhere 😉
I wish more doctors (and the rest of the world!) acknowledged that this disease affects every aspect of our lives. If you can get someone to talk to, on a regular basis, that could help you digest everything, I’m sure that could be super-helpful.
I really want you to know that so many of us have been in a similar situation to yours. Right now I am going through a very trying period in my life, and I could have never foreseen this pandemic and how it would affect me personally. These are trying times, and you are doing your best, I am sure. You did great in reaching out, and sharing your thoughts with this community. Sometimes just letting it out of our system helps a lot.
Please be kind to yourself. Maybe do something a day that is “your thing”, where it is picking up a book you love, listening to a particular song (I’m really into the Dixie Chicks right now), a podcast that makes you laugh, or watching something that makes you smile (Modern Family repeats are my current jam), when everyone else has gone to bed, just to have a moment for yourself, a little breather. Maybe you can’t do this every day, but maybe you can plan it for it to happen in a couple of days. I know it’s not easy, and only you know what you can and cannot do.
But do know that this community is here for YOU, and that you are not alone in this. You can reach out to us, whenever you need and we will hear you.
I am sending you the biggest of hugs 😀 - Jessie (endometriosis.net team member)
"Not sure which is worse...constantly bleeding or barely bleeding and in horrible pains! Ugh...luckily I'm almost done with work. 2 hrs 18 min to go."
I hear you on that @CSKSMJHP. Both are pretty frustrating and so exhausting to deal with. How have you been feeling lately? Hopefully well! Just wanted to check in on you! -Kimberli (endometriosis.net team member)
"Feeling loved...my mom stopped by and dropped off homemade bean soup. Although, because of dietary restrictions, I myself am not able to enjoy. This has made my night so much easier. All I have to do is warm it up and make corn bread for my family! Eggs for me tonight."
That is @CSKSMJHP to have had a meal prepped for the family. At least for myself that's sometimes half the stress of my day figuring out what to make for dinner for everyone! Glad that was one thing taken off your plate for your day...you deserve it! 😀