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Newly diagnosed with DIE (and adeno)

Hello everyone, I hope you're having a nice day today and that you're not in pain <3

For the past 8 years (that is, since I got my first period) (I recently turned 21), I’ve been in a lot of pain, and I was often told that there was nothing wrong with me, even after several ultrasounds. Then, a couple of months ago, after yet another ultrasound, I was diagnosed with adenomyosis. Then, yesterday, after an MRI, I was diagnosed with DIE (deep infiltrating endometriosis) with two adhesions (bladder and intestines), even though I was often told that doctors "saw no signs of endometriosis", yet every month I found myself (and still find myself) doubled over in pain, almost fainting (with other debilitating symptoms too).

Now I finally know what I have, but I know the journey to treat all of this won’t be easy. I’ve already tried several birth control pills, and unfortunately each one gave me terrible side effects that, paradoxically, were worse, and were even more debilitating. Despite this, doctors seem to keep pushing for the pill, and it feels like talking to a wall.

If you’re experiencing awful symptoms, you have the right to be taken seriously by doctors and to know the cause of your pain (and all your other symptoms)! If you still haven’t received a diagnosis, keep fighting! Feeling this bad isn’t normal, and it’s not right either. Your pain is real.
And if doctors always brush you off with alternatives that you know aren't good for you, please find better doctors.

To anyone in a similar situation, hang in there—I’m sending you positive thoughts!

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