Fighting for a diagnosis

so very sorry to hear you are dealing with this all. It sounds like you have been on an exhausting journey already. One I can relate too much too. Your symptoms sound similar to mine. And every time I went to the hospital they would tell me it was constipation or gas and send me on my way without any answers. The unfortunate thing about endometriosis, is most doctors do not know much about it, if anything at all. Which can lead to years and years before a diagnosis. I can't say whether or not what you are dealing with is endometriosis but it certainly does sound similar to my experience. If you haven't yet, I would join Nancy's Nook- it is a Facebook page and she lists endometriosis specialists that you can search for in your specific location or surrounding area. A specialist may be better able to help you. Until then, I would keep fighting with your GYN and keep getting different opinions until someone listens to you. Unfortunately, the only way for a proper endometriosis diagnosis is through surgery. Many times, scans or tests won't show it.


As for the scan of your ovary- hypoechoic typically means cyst. So it could mean you have cysts on your ovaries. But also sometimes just going through menstruation can cause inflamed ovaries. But I am not a medical professional. It can be a number of different things and I would absolutely bring this back up with your doctor and get another scan/opinion on it.


I know this journey is exhausting and frustrating but I want you to know one thing, you are not alone. This entire community gets it and we are here for you. We truly hope you find some answers and relief and a doctor willing to listen to you. Please keep us posted on how you are doing and do reach out anytime you need to chat or have more questions. You will figure this out warrior <3 Hugs. -Kimberli (team member)

This all sounds incredibly stressful. I'm so glad you've found your way here and shared your story. Sadly, you are not alone; so many people with pelvic pain have a long journey to diagnosis. And of course having so much pain and uncertainty can impact your mental health--it's hard! But I think you are asking all the right questions. As said, it can be really helpful to see a gynecologist who has experience in dealing with pelvic pain (including endometriosis). If you are seeing a GP and haven't yet seen a gynecologist, start there. If your regular GYN doc is not helpful enough, ask for a referral to this type of specialist.
Here are a couple of articles that may be helpful along the way:
https://endometriosis.net/clinical/doctors-visit
https://endometriosis.net/coping/delayed-diagnosis
Please stay in touch as to how you are managing!

so so sad to hear this.Whilst am no doctor and everyone’s case and symptoms are different, your symptoms match to a friend of mine who says she exactly had something you are experiencing where her hands would shake and tremble and pass heavy clots with bad flow.She too had bulky ovaries am not sure of the other diagnosis though.Shes now married and has a kid and has absolutely no symptoms.Upon asking how she combated this she says she used to take calcium daily upon recommendation of a doctor plus bananas.She says calcium made the difference but as I said am not a doctor.Definitely consult a good Gynaec who should be able to advice you.