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Could it be endo?

Sorry if this is TMI!

My April period was abnormally heavy and I needed to change my pad four times in 30 minutes at one point. My May period was the same and I woke up one morning covered in blood. In June I had a 1.5 day period, super light but very, very painful, and around the same time I started to get lower back pain and nausea. I had another period at the end of June and almost passed out from cramps and blood loss.

I've had swabs, blood tests, an ultrasound and everything has come back normal... I had a pelvic exam and the doctor said she could feel nodules and thought perhaps it was endo. I'm now dealing with almost constant cramping, lower back pain which was sharp and higher up today, nausea, fullness, and not sleeping well because of it all.

I know that it's not normal for me, but it's not the typical crippling pain you hear about with endo. Any advice is appreciated, I'm at a loss for what to do!

  1. Hi ! I just want you to know this is a safe space and it's never TMI here. You can feel comfortable coming to us with anything, no judgement. I am so sorry to hear about your April, May, and June cycles. That sounds awful, very uncomfortable and difficult to go through. My heart is going out to you reading all of that.


    Endometriosis can really only be diagnosed via laprascopy. Did your doctor, since they thought perhaps it was also endo, discuss scheduling a laparoscopic surgery with you? I am going to include an article that goes into detail what to expect if you're going to move forward with one: https://endometriosis.net/diagnosis/laparoscopy-surgery-biopsy.


    Unfortunately, with the pain level you mentioned, it runs the spectrum with endometriosis. Some people experience no pain, some light and some have debilitating pain. It really depends on what stage their endometriosis is in. Here's an article that describes what I mean when I say stages: https://endometriosis.net/clinical/stages


    In terms of pain management, that is something that should definitely be discussed with your doctor. They will have the best insight on how to treat you from a clinical standpoint. I am going to include an article for now on things you can try at home to combat that pain naturally until you get a chance to talk to your physician: https://endometriosis.net/living/pain-management, https://endometriosis.net/chronic-pain.


    I hope that information helps dear Olivia. I am sending you SO many hugs right now and well wishes for a low pain day. Please let us know what happens with your doctor in terms of a plan to move forward and also keep us posted on how you're doing and feeling. You have an entire community of people that understand here. We're here for you anytime you need us. 💛 Kayleigh, Endometriosis.net team



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