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Anyone a type 1 diabetic with ENDO?

I've been a t1D for 13 years, PCOS for 8 years and recently started having issues with ENDO. I seem to be fairly lucky with low levels of pain which I can manage however whenever I have flares with the pain I have began having issues with insulin resistance. My endocrinologist tells me that that's a sign of PCOS but I've never had this side effect before (except for the time I was on the pill) until the last 8 months when I started having the ENDO symptoms. Does anyone else have this issue? I had my first hospitalisation (DKA) because of it and it's really screwing with my diabetes management. My gynie didn't have anything to say/help as all the treatment is based around pain management and fertility which are not my issues. She suggested trying the pill again as that might help the overall system but considering the pill made me insulin resistant last time, I am hesitant to try it again. I'm at my wits end trying to get my body to just function somewhat normally and just wanting to know if there are other diabetics facing the same issue and if so, have you found anything that has helped? Thanks in advance.

  1. Hi , I wanted to chime in while we wait for other community members to jump in. I'm curious, have you mentioned this to your endocrinologist? Have they suggested a birth control or a regiment that they feel might work better for you than the one you had that made you insulin resistant (which must have been so scary to go through by the way.). My heart is going out to you on this decision. Is there any way you can ask your endocrinologist and gyno to work together on this decision? ๐Ÿ’› Warmly, Kayleigh, Endometriosis.net team

    1. Thanks , I am seeing my endocrinologist in about 3 weeks and will definitely be talking to her about it. I haven't seen her since either the hospitalisation and the appointment with the gyno. I know she doesn't have as much experience with endo as she does with PCOS and t1D so I'm not sure what will come out of it. In terms of PCOS, I have tried the pill and metformin but for various reasons discontinued them and prior to the endo symptoms starting last October, my period has been the most regular and best it's ever been so we decided against experimenting with more contraceptive pills but with the development of endo I'm really not sure what we will do.

      1. Hi , I see. I'd be curious to hear what your endocrinologist thinks about it all moving forward. That must be so frustrating to go through all of this and I'm so sorry that you are. Since you have 3 weeks until your endocrinologist appointment, I wanted to leave a few articles for you. We are not medical professionals and cannot give out medical advice but I wanted to leave some articles about treatment and at home things you can try if you feel like you're in pain until you meet with your doctors:


        https://endometriosis.net/treatment



        https://endometriosis.net/living/pain-remedies



        https://endometriosis.net/living/pain-relief-gadgets



        I hope that helps dear Rhubekah. I'll be thinking of you and sending good vibes your way. ๐Ÿ’›๐Ÿ’›๐Ÿ’›


        Kayleigh, Endometriosis.net team

      2. Thanks !

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