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I’m struggling with pain.

I always knew something was wrong. I’m 24 now (no children ). Growing up I had the worst pain 3 weeks out of the month, if not the entire month. I had tried asking a doctor about it and was given an amped up midol. It didn’t help of course. My mom cut my health insurance off as soon as I turned 18 so I had to deal with it on my own until I could afford it myself later on. I worked at a hospital as a tech and saw how wonderful one of the obgyn doctors were.

I started seeing her and told her about all the pain and issues I had. She was very reluctant to officially call it endo ( even though I have a family history of it) until after several medications and surgery later. She found some scarring, but was too minimal to do anything. I still have daily issues and it’s hard to explain to people how it affects my life. I have had days where the pain was so bad I would have to leave work because I couldn’t walk. I have had to pass up new positions at work I would enjoy more because I’m scared it would be too much on my body to stand that long. I have been referred to a urologist and a gi doctor to try to help with those related symptoms. The urologist wouldn’t touch me until after I have children. The Gi doctor has taken me off gabapentin, the only medication that has helped ease the pain up to a mostly tolerable level, to try a different nerve medication that didn’t work. I am just now weaned off of that medication, but he won’t put me back on my gabapentin so I’ve been feeling a lot more of my pain again.

I feel like I am back at step one with my pain levels. Thankfully my obgyn has me on aygestin and that has helped me more than anything since my periods were crippling. I just want to get into something that will help make daily life more achievable for me. I have my whole life ahead of me and I can’t even enjoy it.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Endometriosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

  • Jessie Madrigal moderator
    3 months ago

    Hello @moemood, thanks for sharing your experience with us. It sounds like you’ve been through so much. I can really relate to your issues at work. Having a career is something that can be really tricky when living with endometriosis. I hope you can find the relief you so need, soon. It’s out there, for sure. It always gets better and the bad days don’t last forever, that, as an endometriosis patient, I know. Please reach out to us whenever you need – Jessie (team member)

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