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Endo vs. Emmanuelle

‘Endometriosis.’ Usually, I have to repeat it twice, because most people have never heard about this disease. Strange, if you consider 1 out of 10 women suffer from it. (which is approximately 176 million women in the world) We have the same number of patients who suffer from asthma or Diabetes, which are of course much better known by the General public. I suffered from period pain, since I was 16, which was getting worse and worse, as time went by. At 34, I arrived at a point where I was having bowel problems, for at least 10 days a month. I could be having loose stool 3-4 days before my period, cramps during period and I was constipated up to 4-5 days after my period ended. Numerous doctor appointments and hospital visits, unfortunately brought nothing. Everyone said, it was normal to suffer during period… and I believed it.

Finally getting a diagnosis

At 35, after a horrible IVF cycle which led to an endometriosis-outburst, I finally received a correct diagnosis and received proper surgery… This was 6 months ago. I still find it very hard to accept, that there are still many women who have to go through this and I really hope we can all help raising awareness about our illness by speaking up.

You can read more about Emmanuelle on her blog here.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.


  • Endo Warrior moderator
    4 months ago

    Hi @emmannuelle, thank you for sharing your story with us. Sadly, it is not uncommon for it to take this long to be diagnosed. It took me 15 years to get a diagnosis – like you, I was told that my pain was normal.

    You are right that speaking up about endometriosis and raising awareness of this disease will hopefully help other women get a diagnosis quicker. The sad truth is that people are still reluctant to talk about anything to do with menstruation, so I think it’ll remain an uphill battle. Not that we shouldn’t keep trying, and this website is a good step in the right direction.

    Christina (team member)

  • Emmannuelle author
    4 months ago

    Thanks for your reply, Christina. I agree, let’s continue and at least try and give our disease the attention it deserves.
    All the best to you!

  • alesandrabevilacqua moderator
    5 months ago

    Hi, @emmannuelle! Thanks so much for sharing your story with us. Wow, to wait nearly 20 years to hear this news and receive a diagnosis. Can’t even imagine that feeling. Acceptance is part of the journey, and I’m hopeful it will come for you in time. In the meantime, feel free to continue browsing around our site for similar stories, articles, and insight from others going through this. You aren’t alone in your battle with endo. We’re here for you anytime. Hang in there! <3 – Alesandra ( Team)

  • Emmannuelle author
    4 months ago

    Thanks a lot Alesandra, I really appreciate your support and think it’s great that the group exists! All the best to you.

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