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A woman stands in front of a large open book, behind a podium to tell her story.

Where Do I Start? How to Share Your Endometriosis Story

“I want to share my story, but don’t know how to start…”

If this sounds like you, you’re not alone. We’ve heard people say this quite often in the endometriosis community. Getting started can be the hardest part, especially if this is the first time you’ve ever shared your story.


At first, sharing your story can be scary. You might wonder how others will respond, or if they will respond at all. Or, you may worry that nobody wants to hear what you have to say… We can assure you that isn’t true. We read every story that gets submitted to Each and every story has a tremendous impact, and helps raise awareness for the challenges of living with endo. You never know who will read your story, and how they might be able to relate.

After finally taking the leap, many people will say that they can’t believe they waited so long to share their story. Some will even say that sharing their story is one of the best things they’ve ever done.

Ready to share?

We’ve gathered the components that make up many endometriosis stories and outlined some pointers to walk you through sharing your story. While there isn’t a single format or structure for a story, we hope these help you with sharing yours (whenever you are ready, of course). Let’s get started!

Introduce yourself

Start with a short introduction about yourself. Remember, your audience does not know who you are, so include relevant aspects about your background or interests. How long have you been living with endometriosis symptoms? If you’ve been diagnosed, share about that experience, and how you were or are feeling about it.

Share your symptoms and treatment

Many people will open up about their symptoms, and what they’ve been doing or trying to manage them. They talk about their visits to the doctors, and what they are learning about their condition. Have you undergone any tests? What treatments, if any, are you using and how has that been going?

Say how you are doing today

The end portion of the story usually includes a reflection or an update on how they are doing. Have you made any progress since the beginning of your journey, or have things gotten worse? What mental hurdles are you facing? Have you found support online or in-person? What are your hopes or plans for managing your endo?

Don’t forget to make it personal

No two stories are the same. Be sure to incorporate some personal touches to make your story unique to you. Whether it’s your raw emotions, sense of humor, or writing your story like a poem or song, your story can be as unique as you are.

Click here to share your endometriosis story on

We look forward to reading your story! Team

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.