The First Misdiagnosed Embarrassment

The First Misdiagnosed Embarrassment

I started to experience my endometriosis pain around the age of 16. The pain became so unbearable that I ended up taking a trip to the ER. My parents were going through a divorce at the time, and I was with my dad, who took me. After a few generic questions, the ER doctor said he was ordering a pregnancy test. As a 16 year old girl who knows there is NO possible way of being pregnant (that bridge hadn’t been crossed yet), I kept telling the doctor it wasn’t possible. Disregarding everything I said, he said that was the first test he needed to do before proceeding with any other testing. So, with my dad standing there, I went ahead to go pee in a cup while wanting to burst into tears and crawl in a corner and hide with embarrassment.

Ovarian cysts became the regular “diagnosis”

Not to my surprise, the pregnancy test was negative. After an ultrasound, the conclusion was that I had an ovarian cyst that burst. They sent me home with instructions to take Advil. This became the ongoing diagnosis for years. Every OB/GYN, ER doctor, and primary care physician that I encountered had the same suspicions of ovarian cysts. Years of internal and external ultrasounds were performed, and “cysts” was the only word I ever heard.

Living with the pain was “normal”

The pain I experienced became something I hid. After my first embarrassing experience with it, I just wanted to ignore it in hopes it would go away. I didn’t want to discuss it with my parents.  It took years to discuss it with my doctors on a regular basis. No matter how the pain affected my life, I just lived with it. I didn’t want to stay medicated, so dealing with the pain was the only option.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The Endometriosis.net team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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