Help and Advice Needed
Hiya I am 22 years old and been diagnosed this month with endo. It is believed I have had it for a good few months now but doctors wouldnt look further into my case till i ended up in a&e curled up in extreme pain. I have so many symptoms going on and i have no clue if they are to do with the endo or not. I also have no clue on what stuff i could try to help me.I have pain 24/7 ranging from pain i can deal with in everyday life to pain where i am stuck in bed.
Sometimes it feels like i have a weight on my stomach and chest. Is this normal?
I have severe nausea and fatigue.
The bloating of my stomach ranges and it can be quite bad.
Does anyone have any tips or advice or stuff you use to help with any of this? Or stuff that helps with other symptoms.
I already have myoovi which helps so much and heat pads to use.
I just keep so much that is advertised to help endo but when you look into it i cant find if it actually does or if people with endo have used it at all.
So sorry for the long paragraph. Its just i knew my body inside and out and now i have no clue and am having to re learn all over again and i feel kinda lost with it all.
Thank you 😀
Hi
. Welcome to the community! I am glad you found us. You sound much like my daughter, who was diagnosed at 20 years old after an ER visit. She had laproscopic surgery to confirm the diagnosis and doctor ended up excising tissue from several different places. She is also taking hormones. Two years later, she still has some discomfort and bloating, but nothing like she was experiencing before. Excision surgery can help, but it's not it's not a cure. Some people experience regrowth soon after. Has you doctor talked with you about any treatment options. Have you found an entrometriosis specialist? Here is an article about treatments that might interest you: https://endometriosis.net/treatment.
Your symptoms -- feeling like there is a weight on your chest and stomach, fatigue and nausea -- might be related to your endometriosis, but they might also be symptoms of cardiac problems or other health issues. Have you been evaluated since these symptoms started? If not, you might want to make another ER trip just to be safe or at least make an appointment with your doctor ASAP.
It sounds like there is so much more your doctor could be doing for you. Unfortunately, you will probably have to advocate for yourself to get the care you need and deserve. Please know we are here for you whenever you need us and keep me posted, if you don't mind. I will be thinking of you. - Lori (Team Member)Hi Lori thank you for your kind message. It means a lot. I have finally had my doctors practice contact me yesterday and i have been prescribed mefenamic acid, omeprazole and tranexamic acid. I have also been referred to the gynecologist about the laproscopic surgery so fingers crossed. That is wonderful,
. I hope the medication helps and that surgery proves to be effective in relieving your symptoms. If nothing else, it will give you a clearer idea of what you are dealing with and, maybe, some peace of mind. Gentle hugs. - Lori (Team Member)
